Out of my mind

 

 

” I live in a cage with no door and no key. And I have no way to tell someone how to get me out.”–Out of my mind

My greatest fear is to remain paralyzed. Perhaps, I could accept not to use my arms or legs and to be taken to the bathroom or for a walk. I could accept to depend on another person … but I could never accept to lose the use of words or the use of my hands.  With my hands and words, I paint, caress, write, and taste life.

My father had a stroke when I was six …. paralyzed for months without the use of speech and hands. Maybe that’s why my biggest fear is to find myself silent and still …like  a tiny rock in the darkest ocean.

Maybe that’s why the pages of Out of mind made me tremble. Trembling first of fear … then of joy.

The protagonist of Out of mind, Melody, has cerebral palsy. She  does not speak. She  only moves her thumbs and depends entirely on others. But, she has a wonderful brain and a kind heart that makes her fly.

Melody has a voice and she is not afraid to use it even when prejudice and ignorance force her to scream even louder.

Melody made me realize that diversity is difficult to accept. Why? I am not sure. Maybe, we feel superior to others..or..inferior. Maybe, we feel too powerful..or powerless. Maybe, we feel too ignorant or too smart.

if we could only understand that diversity is just a synonym for variety–something differing from others of the same general kind–we would see diversity as something positive, as something that we all have….

We admire a tree for the variety of colors and leaves it has … we admire the sky for the variety of stars and clouds it has ….

When  we look at that tree we don’t think of destroying it. When we look at the stars we don’t think of tear them all down …

And so, I wonder, why do we look down on people different from us instead of admiring them?

” I have spastic bilateral quadriplegia, also known as cerebral palsy. It limits my body, but not my mind.”-Out of my mind

Hugs,

Ink n Paper.

If  you would like to know  how to better understand and support people with cerebral palsy, check these videos:

 

 

 

 

 

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